The French Rare Diseases Market

With 3 million people affected in France, rare diseases are a major public health issue.

25% of concerned people must wait, on average, four years before getting a reliable diagnosis.

For 95% of the 7,000 rare diseases identified, there is no curative treatments.

This new position paper proposes to:

  • Review the conditions of rare diseases management
  • … and of orphan drugs market access in France
  • Analyze the organization of the different stakeholders
  • Illustrate the current situation through the study of Narcolepsy